Rare Disorders Pierre Robin Syndrome
You have found the way to Pierre Robin Syndrome on Rare Disorders:
See also:
Chase's Story - Personal account of one child's experience of this condition. Includes photographs.
Contact a Family: Pierre Robin Syndrome - Main features of the condition and possible causes.
NORD - Pierre Robin Syndrome - Sample report, plus links to organisations. [Fee required for full report]
Pierre Robin Network - Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts. Help build the largest human-edited directory on the web.
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