Neurological Disorders Rett Syndrome
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- Health: Conditions and Diseases: Rare Disorders (122)
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Rett Syndrome Research Foundation - Promotes biomedical research for the treatment of Rett Syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links, studies, support groups, and information on the Rett Syndrome gene MECP2 recently discovered.
International Rett Syndrome Association (IREA) - The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome.
NINDS Rett Syndrome Information Page - Information in Rett Syndrome, treatment and prognosis.
Rett Angels - Rett Syndrome forum and online support group sharing personal stories and information.
Rett Language - One family's experience with Rett Syndrome, Applied Behavioral Analysis and Discrete Trial Teaching.
Rett Syndrome - The Autism Research Institute distributes an information packet on Rett Syndrome.
Rett Syndrome Association UK - National charity provides support to patients, their families and carers. Features details of the condition, research findings, and clinics, as well as FAQ and an events calendar.
Rett Syndrome Fact Sheet - An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS).
The Sarah Varon Foundation for Rett Research - A family dedicated to finding a cure for Rett Sydrome. Find announcements, photos, and an overview of the disease. Help build the largest human-edited directory on the web.