Genetic Disorders Sanfilippo Syndrome
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See also:
- Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue (263)
- Health: Conditions and Diseases: Nutrition and Metabolism Disorders (408)
- Health: Conditions and Diseases: Rare Disorders (131)
Bennett Children's Foundation - Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
Ben's Dream - Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
Children's Medical Research Foundation - Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
Frankiepants - Personal site about a child with this disorder. Provides details about the condition.
MPS III - Information, including the causes, different forms, the inheritance and how the disorder progresses.
The Sanfilippo Children's Research Foundation - Canadian based charitable group founded by the parents of Elisa Linton.
Special Child: Disorder Zone Archives - Sanfilippo Syndrome - Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect. Help build the largest human-edited directory on the web.