Genetic Disorders Fragile X Syndrome
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See also:
- Health: Conditions and Diseases: Neurological Disorders: Chromosomal (12)
- Health: Mental Health: Disorders: Child and Adolescent: Mental Retardation: Causes (0)
Carolina Fragile X Project - A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
Conquer Fragile X, Inc. - Creating a virtual research center in Israel to find a cure.
Fragile X Association of Australia - Information on this disease, medical aspects, education, references, contacts and what's new in Australia
Fragile X Association of Southern California - Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
Fragile X Research Foundation of Canada - Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.
Fragile X Syndrome - Diagnostic and Carrier Testing - A Policy Statement from the American College of Medical Genetics.
FRAXA Research Foundation Home Page - Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
Living with Fragile X - One family's account of raising 3 children with Fragile X.
Maryland Fragile X Resource Group - A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
The National Fragile X Foundation - Features information about the disease, its treatment, and inheritance.
Online Support Group - Support group for Family's who are dealing with Fragile X Syndrome.
Pediatric Oncal - Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations. Help build the largest human-edited directory on the web.